El pasado viernes 21 de marzo, se celebró la jornada «Juntos frente al reto: Día de Concienciación sobre Síndrome de Noonan y Rasopatías», un evento clave para visibilizar esta enfermedad poco frecuente y compartir los avances científicos más recientes.

🗓️ The event took place between 4:45 and 8:15 p.m. and was attended by specialists, patients, family members, and researchers committed to improving the quality of life for those living with Noonan syndrome and other rare diseases.

📄 During the conference, participants discussed the impact of the disease on patients, advances and future prospects in treatment, as well as the main ongoing Lines of research . The event concluded with an open discussion among speakers and attendees, and the presentation of conclusions that will chart the course for care and research into these diseases.

🔗 You can view the full schedule for the event in the image below:

🎥 If you weren't able to attend or would like to watch it again, here's the link to the recording of the event: RECORDING.